POLARIS Clinical Development Program

Resources

Narcolepsy Advocacy Organizations

UNITED STATES

American Academy of Sleep Medicine (AASM) | Sleep | Medical Society
Find Sleep Help & Resources for your Sleep Problems – Project Sleep (project-sleep.com)
Sleep Foundation | Trusted Sleep Health Information and Product Reviews
Wake Up Narcolepsy Inc.
Narcolepsy Network, Inc.
Center for Narcolepsy, Sleep and Health Research

CANADA

Patient Support Group – SLEEP ON IT! – Public Health Campaign on Sleep
Sleep/Wake Disorders Association of Toronto

EUROPE

European Narcolepsy Network

AUSTRIA

Österreichische Narkolepsie Gesellschaft

BELGIUM

ABN-BVN A.S.B.L. – Association Belge de Narcolepsie – Cataplexie / Belgische Vereniging voor Narcolepsie
RaDiOrg – Rare Diseases Belgium – BE
Rarity United A.S.B.L. – Organisation pour les parents d’enfants atteints d’une maladie rare ou non diagnostiquée

DENMARK

Dansk Narkolepsiforening

FINLAND

Suomen Narkolepsiayhdistya RY

FRANCE

ANC : Association Française de Narcolepsie Cataplexie et d’Hypersomnies rares

GERMANY

DGN – Deutsche Narkolepsie Gesellschaft e.V.

IRELAND

Sufferers of Unique Narcolepsy Disorder (SOUND)
Narcolepsy Ireland

ITALY

AIN – Associazione Italiana Narcolettici – ONLUS

NETHERLANDS

NVN – Nederlandse Vereniging Narcolepsie

NORWAY

Søvnforeningen

ROMANIA

Organizatia trebuie- Bacau

SPAIN

ABAIMAR: Associació Balear d’Infants amb Malalties Rares
Asociación Española de Narcolepsia (AEN)
ALER – Asociación Leonesa de Enfermedades Raras y sin diagnóstico
FECAMM – Federació Catalana de Malalties Minoritaries
FEDER – Federación Española de Enfermedades Raras
FEGEREC – Federación Gallega de Enfermedades Raras e Crónicas
D’GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana
GERNA – Grupo de enfermedades raras de Navarra

SWEDEN

Neuroförbundet (Neurologiskt handikappades riksförbund)

SWITZERLAND

Schweizerische Narkolepsie Gesellschaft (SNaG) – Société Suisse de Narcolepsie – Società Svizzera di Narcolessia (SSNa)
ProRaris – Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera
Swiss Narcolepsy Network
Schweizerische Narkolepsie Gesellschaft SNaG / Société Suisse de Narcolepsie SSNa / Società Svizzera di Narcolessia SSNa

UNITED KINGDOM

Narcolepsy UK
Cerebra (Support for children with brain-related neurological conditions)